Hi – I found the information interesting but also terrifying. I hadn’t realised how many types there are. I’m mostly scared that when I described what now seem to be very obvious tonic seizures from sleep to my specialist nurse (when I’d only every ever had a few and always of a different type, which was nothing like these two, so I didn’t know whether they were seizures or just vivid nightmares of not being able to breathe that magically left me with sore muscles the next day), she said not to worry, they weren’t seizures at all! Between (sadly) much more personal experience with how different types of seizures feel now and the information in this module, I feel sure she was wrong. How can the charity know something the specialist nurse doesn’t? No offence to either the charity or the nurse, because on the whole I feel incredibly well looked after. I know I’m a generally fearful person, too, so this is just my personal response that other people might not have. In any case, it’s better to keep learning even when what you’re learning is about scary things, so I’ll keep going. My big ones never give me any warning at all, and though I go rigid, fall and convulse, I’m also fully aware of what’s going on around me – I just can’t do anything about it.
