I just really need a hug.
I have been dealing with everything on my own, I have no care plan, nobody has ever explained the side effects directly to me (my knowledge has been google). Plus I never want anyone to come with me to appointments as I become so upset and anxious about going to see the consultant I dont want anyone to see me like that and worry about me (then I worry about them worrying about me!)
However one thing I would like to share (tip) when I open my drugs packed I write the day on the week on each bubble (M = Monday, T= Tuesday and so on) with a marker pen. This is really helpful as if I’m not sure if I have taken the tablet it makes it idiot proof for me.