42 years of experience with more problems from medication at times than seizures but never been without. No pattern until fairly recently when they can be up to 7/10 days apart then up to 7/8 together. All types of seizures depending on stress levels. Noise also used to have enormous effect. High pitched noises ( hoovers, electric goods in kitchen), also echoes in churches. Now when noise is too loud the effect is significant so wear ear plugs. Therefore first thing when going to cinema or theatre is put in ear plugs. I have had some funny looks.
Now I just except life as it is and get on with it. Try not to let my epilepsy take over. Hope I can obtain a better quality of life by doing this course.
At present I am trying a new drug, perampanel but still titrating so not at full dose. As it is a different part of the brain it works on I hope this can be the one to stabilise.
