It was hard to imagine what my relationships were like when I was diagnosed with epilepsy – I was 9 months old so would have no idea. I did try to make comparisons to how people treated me when I went from 19yrs control to total haywire.
Losing my job in education was bad BUT the worst bit for me was independence through losing my driving licence.
My husband and son were a little apprehensive at first but soon came to turns with it and now they treat it as funny incident with mom. (I don’t have TC’s)
I do hesitate to go to various places as I have heat as a trigger and going shopping in a huge crowd of people can be interesting . I am also photosensitive so window displays etc can be very troublesome.
I am lucky enough to have been to 2 meetings with people I got to know from forum4e chat room. 1 was in Manchester and we had overnight stay and the 2nd was in Leeds with a nice meal …. people from all around the region.
Going to the Christmas Carol Service in Leeds is one of my highlights of the year.
