Hi All. I’m Sakina. I’m 38 and was diagnosed with epilepsy about 3 weeks ago. I’ve had 4 tonic clonic seizures in the last 6 years, with 2 of them being last week and 1 in November 2020. It was a real shock. I’m so used to being told ‘oh just lose some weight’ or ‘get some more sleep’, or ‘you should do more exercise’ that having a confirmed medical condition has knocked me for six. I find myself very angry and frustrated at not being able to drive, and I’m worried what this means for my ability to do my job, particularly as my new boss hasn’t been very supportive. I really hate relying on people and feel my independence being chipped away at. I’ve started AEDs which have made me feel sick and miserable but I’m hopeful they will work.
I joined the course as I believe that knowledge is power and I really want to be able to know more and understand this condition, so that I can help myself, but also help others who have epilepsy too.
